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Title:Using data journeys to inform research design: Socio-cultural dynamics of patient data flows in the UK healthcare sector
Author(s):Medina Perea, Itzelle Aurora; Bates, Jo; Cox, Andrew
Subject(s):Data flows
Personal patient data
Heatlhcare sector
Data sharing
Abstract:The uses of personal patient data collected in the healthcare is a growing concern for the society as it can raise serious issues of privacy and power. Currently there is little known about how social and cultural dynamics shaping health data flows between different sites of practice. This research examines socio-cultural dynamics shaping the journey of selected types of personal patient data produced within the UK healthcare sector, from the initial creation of the data through to its re-use for secondary purposes in different contexts. Data Journeys approach is used to inform the research design of this study. This research intends to generate knowledge about the ways in which socio-cultural factors influence the movement of patient data, and consider what this means for how data flows bring patients into different forms of relation with other social actors. The aim is to develop recommendations for implementing "just" practices in data sharing and make patient data flows more clear and transparent. This poster describes how Data Journeys is used to inform the research design of this study and reports preliminary findings.
Issue Date:2019-03-15
Series/Report:iConference 2019 Proceedings
Genre:Conference Poster
Rights Information:Copyright 2019 Itzelle Aurora Medina Perea, Jo Bates, and Andrew Cox
Date Available in IDEALS:2019-03-22

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