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Title:Dealing with privacy – Personal privacy from a research data management perspective
Author(s):Kvale, Live; Darch, Peter T.
Subject(s):Data sharing
Data curation
Research data
Privacy
Open data
Abstract:Sharing research data is increasingly required by key stakeholders, such as funding agencies and journals. However, sharing human subjects data poses multiple issues around protecting these subjects' privacy. This poster examines these issues through a Delphi study, comprising interviews and questionnaires, of stakeholders (n=24) involved in data curation and sharing in Norway. Two particular contexts are considered: 1) privacy in international research collaborations and 2) maintaining research subjects' trust in the re-searcher. The findings presented in this poster show tensions between maintaining subjects' privacy, maintaining trust, and advancing research. These tensions are complicated further by conflicting perspectives on privacy held by different stakeholders. Researchers and other stakeholders must balance these aspects throughout the data lifecycle, from data collection to decisions about sharing. All stakeholders involved in data sharing should pay attention to research subjects through dialog and negotiation.
Issue Date:2020-03-23
Publisher:iSchools
Series/Report:iConference 2020 Proceedings
Genre:Conference Poster
Type:Text
image
Language:English
URI:http://hdl.handle.net/2142/106564
Rights Information:Copyright 2020 Live Kvale and Peter T. Darch
Date Available in IDEALS:2020-03-17


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