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Guidance DocumentPDF


Title:Representing Data Sharing in Informed Consent Guidance for Researchers at the University of Illinois at Urbana-Champaign
Author(s):Balgopal, Anita; Jones, Patricia; Imker, Heidi J; Novakoski, Jan; Reiter, Phil; Robinson, Julie; Vranic-Sowers, Svetlana
Subject(s):Data Management
Data Sharing
Informed Consent
Research Administration
Human Subjects
Geographic Coverage:University of Illinois at Urbana-Champaign
Abstract:Obtaining appropriate consent is critical to data sharing and to reuse in future research. This guidance provides models and advice to consider when creating or revising informed consent language. Many major US funding agencies (for example NIH, NSF, etc.) now strongly encourage data sharing and reuse and may even require it as part of the grant award. Similarly, many academic publishers also encourage data sharing. In fact, articles have been retracted because of the author’s inability to provide the underlying data when a study’s validity has been questioned.
Issue Date:2022-01-24
Date Available in IDEALS:2022-02-15

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