Dealing with privacy – Personal privacy from a research data management perspective

Kvale, Live; Darch, Peter T.

Permalink

https://hdl.handle.net/2142/106564 Copy

Description

Title

Dealing with privacy – Personal privacy from a research data management perspective

Author(s)

• Kvale, Live
• Darch, Peter T.

Issue Date

2020-03-23

Keyword(s)

• Data sharing
• Data curation
• Research data
• Privacy
• Open data

Abstract

Sharing research data is increasingly required by key stakeholders, such as funding agencies and journals. However, sharing human subjects data poses multiple issues around protecting these subjects' privacy. This poster examines these issues through a Delphi study, comprising interviews and questionnaires, of stakeholders (n=24) involved in data curation and sharing in Norway. Two particular contexts are considered: 1) privacy in international research collaborations and 2) maintaining research subjects' trust in the re-searcher. The findings presented in this poster show tensions between maintaining subjects' privacy, maintaining trust, and advancing research. These tensions are complicated further by conflicting perspectives on privacy held by different stakeholders. Researchers and other stakeholders must balance these aspects throughout the data lifecycle, from data collection to decisions about sharing. All stakeholders involved in data sharing should pay attention to research subjects through dialog and negotiation.

Publisher

iSchools

Series/Report Name or Number

iConference 2020 Proceedings

Type of Resource

• text
• image

Language

eng

Permalink

http://hdl.handle.net/2142/106564

Copyright and License Information

Copyright 2020 Live Kvale and Peter T. Darch

Owning Collections