University of Illinois Urbana-Champaign

Dealing with privacy – Personal privacy from a research data management perspective

Kvale, Live; Darch, Peter T.

Content Files
443_106564_iConf2020_Poster_Kvale_Darch.pdf
Contribution_439_final.pdf

Permalink

https://hdl.handle.net/2142/106564

Description

Title
Dealing with privacy – Personal privacy from a research data management perspective
Author(s)
  • Kvale, Live
  • Darch, Peter T.
Issue Date
2020-03-23
Keyword(s)
  • Data sharing
  • Data curation
  • Research data
  • Privacy
  • Open data
Date of Ingest
2020-03-17T23:28:48Z
Abstract
Sharing research data is increasingly required by key stakeholders, such as funding agencies and journals. However, sharing human subjects data poses multiple issues around protecting these subjects' privacy. This poster examines these issues through a Delphi study, comprising interviews and questionnaires, of stakeholders (n=24) involved in data curation and sharing in Norway. Two particular contexts are considered: 1) privacy in international research collaborations and 2) maintaining research subjects' trust in the re-searcher. The findings presented in this poster show tensions between maintaining subjects' privacy, maintaining trust, and advancing research. These tensions are complicated further by conflicting perspectives on privacy held by different stakeholders. Researchers and other stakeholders must balance these aspects throughout the data lifecycle, from data collection to decisions about sharing. All stakeholders involved in data sharing should pay attention to research subjects through dialog and negotiation.
Publisher
iSchools
Series/Report Name or Number
iConference 2020 Proceedings
Type of Resource
  • text
  • image
Genre of Resource
Conference Poster
Language
eng
Permalink
http://hdl.handle.net/2142/106564
Copyright and License Information
Copyright 2020 Live Kvale and Peter T. Darch

Owning Collections

iConference 2020 Poster Descriptions PRIMARY